Pop legend Céline Dion has recently shared insights into her life with Stiff Person Syndrome, expressing her enduring hope for a miracle cure while also learning to adapt and live with the condition.
In a recent interview with Vogue France, Dion, the Canadian singer, opened up about her battle with a neurological disorder that results in progressive muscular stiffness. After receiving her diagnosis in December 2022, Dion made the difficult decision to put her touring schedule on hold and take a step back from the public eye. However, she surprised everyone with a special appearance at the Grammys in February, which earned her a well-deserved standing ovation.
“I haven’t conquered the disease; it still resides within me and will always be a part of my life. I hold onto the hope that scientific research will bring about a miracle cure, but for now, I must learn to coexist with it. This is my reality now, living with Stiff Person Syndrome,” Dion shared with Vogue France. “Each week, I dedicate five days to rigorous physical and vocal therapy. I focus on strengthening my toes, knees, calves, fingers, singing, and my voice. It’s a constant effort to adapt and accept. Initially, I would question myself, wondering why this happened to me. I pondered if I was to blame in some way. But now, I’ve learned to let go of those doubts.”
Dion expressed that she believed she had two options: “Either I dedicate myself to rigorous training and work extremely hard, or I give up and lead a sedentary lifestyle where I simply enjoy my music, sing in front of the mirror, and keep it to myself.”
“I am fully committed to working with a medical team to give my all, both physically and emotionally. I want to give it my best shot and make a complete recovery. My ultimate aim is to visit the Eiffel Tower once more!”
Dion has confirmed that she is still unsure about any plans to perform, as she focuses on regaining her strength.
“I’ve been telling myself for four years that I won’t go back, that I’m prepared, that I’m not prepared… As it stands, I can’t confidently say to you: ‘Yes, in four months,'” she expressed. “I’m uncertain… My body will guide me. However, I don’t want to simply wait. Living day by day is emotionally challenging. It’s tough, I’m putting in a lot of effort, and tomorrow will be even more demanding. But one thing that will never waver is my willpower. It’s the drive, the passion, the dream, and the determination that keeps me going.”
Check out Dion’s complete interview on the Vogue France’s website.
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